Alzheimers is one form of dementia.  And it affects over 5.4 million Americans every year, yet the federal government’s research dollars don’t reflect its prevalence. Nor does spending line up with care costs compared to other diseases as this graphic illustrates… What do you think? Leave a comment below. From my heart to yours… Laugh Well, Love Well and Live Well!     Ina Gilmore, M.D. “The Knitting Dr.” Founder, and Ambassador of Caregiving at Share and Enjoy:del.icio.usDiggLinkedInStumbleUponTechnorati (Read More ...)

I’m delighted to welcome Diane E. Meier, M.D. as a guest blogger for Caregiving With Purpose. Dr. Meier is Director of the Center to Advance Palliative Care at the Icahn School of Medicine at Mount Sinai and Co-Director of the Patty and Jay Baker National Palliative Care Center. Palliative care differs from hospice.  While hospice provides palliative care for the terminally ill, palliative care can also be given to patients with serious illnesses who also receive conventional including curative treatment. Dr. Meier is an expert in palliative care, and understands the issues caregivers face... (Read More ...)

Today is the start of an inspirational climb up Mt. Everest for Alzheimer’s Disease. Kuntal Joisher, an Indian-born man who turned around his life to ascent Mt. Everest is attempting to scale the world’s highest peak starting today.  His target date for completion is mid-June 2014. His climb is in honor of his father who has Lewy Body Dementia, a form of dementia closely associated with Alzheimer’s Disease. When Kuntal crests the Summit, he plans to mark the accomplishment by setting the world record for sending the largest mass text from the highest peak in the world. You can read more... (Read More ...)

Last week actor and Alzheimer’s activist Seth Rogen passionately spoke about Alzheimers disease. And how his mother-in-law being diagnosed with Early Onset Alzheimers Disease in her mid-50s has affected his family.  It’s  a powerful testimony, and I urge you to watch…   If you cannot see the video player, click here to watch now. Did you know that that only two senators stayed for his testimony?   Yes, U.S. Senators are busy.  They invited him to testify… yet the empty chairs show most committee members did not stay for his testimony. Is this… A reflection... (Read More ...)

Last week this area was hit by the worst winter storm in 10 years, leaving power and other services out for days.  It was also during the “Triumphing Over the Isolation of Alzheimer’s Telesummit: Simple Solutions for Family and Professional Caregivers.”  With the loss of power, there was a sudden quiet and disconnection from distractions.  And there was time to reflect…  How Caregiving With Purpose started focusing on Alzheimer’s and other dementias, especially just before “CNN Presents: A Larry King Special—Unthinkable: the Alzheimer’s Epidemic” in 2011.  In writing... (Read More ...)

Alzheimer’s Disease and other dementias are among the loneliest diseases. When I was growing up, it was cancer.  So much so many people referred to it in whispers or “The Big C.”  Then in the 1980s it was surpassed by AIDS.  Now both of those have received more acceptance, while dementias seem to be lonelier than ever. Just at the time when they are becoming more widespread. More than 5 million Americans are living with Alzheimer’s, Alzheimer’s is now the 6th leading cause of death in the U.S., 1 in 3 seniors dies with Alzheimer’s or another dementia. Are you an Alzheimer’s... (Read More ...)

Why is Understanding the Alzheimer’s World Helpful in Caring for Alzheimer’s Disease? Alzheimer’s World is a term coined by Bob DeMarco, Founder of Alzheimer’s Reading Room and Alzheimer’s Front Row.  These wonderful blogs were named #1 and #2 in the 25 Best Alzheimers Blogs of 2013. And Bob has clearly and concisely describes how caregivers can peek inside Alzheimer’s disease by understanding how someone with it sees the world, and reacts to it.  Over the past 6-plus years he has blogged about his journey caring for his mother Dotty.  And in... (Read More ...)

Alzheimer’s disease is a specific form of dementia. Alzheimers symptoms can also be found in other dementias. Not everyone with a disease has all of the possible symptoms or signs at any given time.  This is true for dementias including Alzheimer’s. Janet became a caregiver for her elderly mother abruptly when Janet’s father passed unexpectedly.  Janet took her mother into her home, giving her mother care for the next 15 years. Over time, Janet’s mother was diagnosed with Alzheimer’s disease.  At times, Janet became frustrated with her mother’s behavior. ... (Read More ...)

One of the most frustrating parts of Alzheimers symptoms is the lack of specific early symptoms. That is, symptoms developing before dementia. Now researchers at Washington University School of Medicine may have found an interesting link between Alzheimer’s and abnormal sleep patterns… Washington University Researchers Find Link Between Sleeplessness, Alzheimer’s ST. LOUIS (KMOX) - New research from Washington University School of Medicine shows disrupted sleep could be a sign of pending dementia. Lead researcher Yo-El Ju found that patients who had abnormal amyloid levels in their... (Read More ...)

Sometimes figuring out what the doctor has just said can be challenging for the caregiver. Even sometimes when you are coming out of the doctor’s office. When the doctor told Tom his wife had dementia, his first thought was , “Thank Goodness it’s not Alzheimer’s.”  Only after the doctor explained that Alzheimer’s was still a possibility and why, did Tom understand his wife could have Alzheimer’s. This post I wrote recently for family caregivers explains the difference between dementia vs Alzheimer’s. If you’re wondering about the difference between... (Read More ...)