Sometimes figuring out what the doctor has just said can be challenging for the caregiver.
Even sometimes when you are coming out of the doctor’s office.
When the doctor told Tom his wife had dementia, his first thought was , “Thank Goodness it’s not Alzheimer’s.” Only after the doctor explained that Alzheimer’s was still a possibility and why, did Tom understand his wife could have Alzheimer’s.
This post I wrote recently for family caregivers explains the difference between dementia vs Alzheimer’s.
If you’re wondering about the difference between dementia and Alzheimer’s disease, you’re not alone.
They often mean different things to doctors and patients. And can be confusing.
So what’s the difference between dementia and Alzheimer’s?
- Dementia is a general term describing a group of symptoms.
- Alzheimer’s is a cause of dementia.
Dementia is a term used by doctors to describe forgetfulness and the loss of the ability to think clearly and draw conclusions. Or what is often described as “sound thinking” or “sound reasoning.” Some doctors now use the term “neurocognitive disorder” instead of dementia.
It’s not to add confusion. Instead to doctors it is a more precise term. Another example is that doctors usually call a heart attack a myocardial infarction or abbreviate the term as “MI”.
It’s shorthand to the doctors that precisely defines the term. The myocardium is the heart muscle, and infarction is the process of cell damage that occurs during an MI.
Alzheimer’s disease – also sometimes called Alzheimer’s dementia – is a specific cause of dementia.
Using two terms is similar in describing head or sinus congestion. The congestion is the group of symptoms that describe what is happening. Nasal stuffiness and a runny nose are examples of the symptoms included in head congestion.
The causes of congestion can be varied, including infections like a cold virus or a sinus infection, or allergies like hay fever. And if the doctor doesn’t know the cause, she uses a term like sinus congestion to describe the symptoms.
Dementia too has more than one cause. Alzheimer’s is the most common cause of irreversible dementia in adults. Vascular disease (usually strokes), Parkinson’s disease, vitamin deficiencies and thyroid disease are some of the other in the list of causes of dementia.
The vitamin deficiencies may be preventable, and thyroid dementia may be reversible when treated early and appropriately.
Do you see how knowing the cause of the dementia is important?
Finding the cause, especially finding one that is potentially treatable and even reversible, is why an examination for the cause of dementia is important. A history and physical exam will tell the doctor some things, and laboratory tests, radiology tests or other tests or referrals may be ordered.
And to the caregiver, knowing a more precise diagnosis than dementia can help you in your caregiving. The doctor should explain the expected course of the dementia. Doctors call this the prognosis.
Knowing what to expect can help the caregiver and family plan for the future. It’s quite different to know that someone’s disease will continue to get worse rather than stay at the same level.
One place to get information about caregiving and help in finding resources is a free service from AARP. Their Caregiving Resource Center has a lot of information for caregivers. They even have a toll free phone line to help you find the resources you need.
Just go to http://aarp.org/caregiving and check it out yourself!
Original Post:
Sometimes the difference between dementia vs Alzheimer’s is not as important.
When service personnel like a waiter understands that the person you are with may be forgetful and easily confused, it really doesn’t matter if they know the exact diagnosis.
They probably will be more likely to be compassionate and patient, if they know there’s a problem.
Yet caregivers are often unable to discretely let them know there’s a potential problem. After all, you probably don’t want to let the entire restaurant know.
Wondering how you can discretely let someone know the person you are with is forgetful and may get confused or upset unexpectedly?
Now there are business-size cards you can carry with you to quietly alert a waitress, receptionist or other service people the person you are with has Alzheimer’s disease or another dementia.
Without alerting the whole room.
Just click here now for your cards.
To your thriving in caregiving,
Dr. Ina
Ina Gilmore, M.D. (Retired)
“The Knitting Dr.”
Founder, www.CaregivingWithPurpose.com and www.TheKnittingYarn.com
Ambassador of Elder Care at www.HowToLiveOnPurpose.com
Original Post:
4 Comments
Leave a Reply




del.icio.us
Digg
Facebook
LinkedIn
Reddit
StumbleUpon
Technorati
Twitter
RSS
Add to favorites
Print





Hi Ina,
We appreciate your participation in our annual Best Health Blog Contest. As a token of our appreciate we’re awarding you with a badge, ‘Voted One of the Top Health Blogs of 2012.’
Also, if you haven’t seen it, we recommend reading about this year’s winner: http://www.healthline.com/health-news/breast-cancer-blog-wins-Healthline-contest-022013. She is an inspiration for many.
Please let me know if you have any questions. And, we hope to see you next year! In the meantime, please stay in touch by connecting with us on Twitter @healthline or Facebook: https://www.facebook.com/healthlinenetworks.
Warm Regards,
Tracy
Hi Tracy,
Thanks so much! I’m honored that Caregiving With Purpose was voted #14. Raising awareness about caregiving and caregivers’ struggles is an important part of its mission.
Looking forward to next year.
To more than surviving – thriving in caregiving,
Dr. Ina
My mother has an appointment with a neurologist next month. We think she has Alzheimer’s. Do you have any ideas about what the appointment might be like? She has no idea of how long it will take, or if there are any tests she will have to do.
Family Fandango recently posted..I flushed the fish down the toilet by accident
Sure, I know generally what a neurology appointment for possible Alzheimer’s is like. However, the best place to get answers is the neurologist’s office.
The neurologist’s office staff should be able to tell you about how long the initial appointments usually last, whether there is usually a wait in the waiting room and what that time usually runs, and what tests are likely. They should be able to tell you what exactly the doctor is likely to do during the exam. It may be the same for all patients, or the doctor may decide during the exam what to do individually. The exam and tests may be guided by what testing has already been done. Also your mother’s insurance plan may require approval before some tests are ordered, or your mother’s primary care doctor may need to order them.
If you explain to the staff your concerns and reasons, such as your mother is anxious or worried, they will probably understand and be helpful. If they are unwilling to answer your questions, I suggest you contact the doctor’s office who referred your mother to the neurologist. They may also be able to answer many of your questions.