In February 2014, Caregiving With Purpose hosted the first global Internet Alzheimer’s Telesummit. Now you can listen to the overview to discover what the telesummit is all about.
The rest of the FREE Telesummit Live Sessions and the Free Replay Period Are Over.
You can still get access with this special offer…
- You miss one of these VALUABLE sessions and don’t have a chance to catch the replay?
- You want to review part of a call over and over again?
- You get interrupted in the middle of the LIVE session or 48-hour replay and can’t get back in time?
- You want to listen again to the AMAZING insights on each call?
- While frantically jotting down one point in your notes you suddenly realize you’ve missed another 2 or more?
Here’s how you can get the WISDOM, TIPS and INSIGHTS of these experts in dementia caregiving — permanently… These speakers have been “in the trenches” with Alzheimer’s and other dementias. They share their insights and the lessons they’ve learned so you can benefit from their experiences and wisdom. And they’ll reveal what is important in giving care… including why it’s important to find your joy and purpose while caring for someone with dementia. Helping someone with dementia may be the hardest — and best — unpaid “job” you ever do for love.
“To love a person is to learn the song that is in their heart,
And to sing it to them when they have forgotten.”
~ Arne Garborg (1851-1924)
Caring for someone with dementia is more than giving care to their body. Listening to these experts will give you tips and insights to inspire and encourage you in your caregiving journey. And if you’re like many, you’ll finally realize you are not alone!
Here’s How You Won’t Miss Even a Single Moment!
Download the sessions to your favorite device and listen at your convenience. Get interrupted? Come back when your schedule allows. If you prefer a streaming option, that’s included too. Get Permanent Access to ALL the Recordings To Listen To When You Choose! YES! I want Permanent Access so I can listen whenever I want for as long as I want!
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Lori La Bey, (LA BAY) is the Founder and CEO of Alzheimer’s Speaks, a US based advocacy group that provides education and support for those dealing with Alzheimer’s disease and dementia worldwide. She was named the #1 Influencer online for Alzheimer’s by Sharecare with Dr. Oz in November of 2012.
Lori’s mission is to deliver programs, platforms and collaborations which shift caregiving from crisis to comfort worldwide. In fact, she was just appointed as an International Ambassador for the Purple Angel Project, the new global symbol for dementia.
Lori is a highly sought after speaker, trainer, writer and advocate for new delivery systems and attitudes towards those with memory loss. Her training programs are designed for people with memory loss, family & professional caregivers; as well as the public. She brought the first Memory Café to the US and just launched a dementia friendly community in WI, which is believed to be one of the first in the US.
Lori’s talk “Improving Dementia Care Through Economical & Global Collaborations, “ focuses on Memory Cafes, The Purple Angel Project and Dementia Friendly Communities.
Janet Edmunson is an inspirational speaker, writer and health promotion professional who is dedicated to using her life experiences and inner values to support the growth and self esteem of the people her life touches.
While working full-time, Janet took care of her husband, Charles, during the five years he fought a movement disorder with dementia. Janet wrote about her experience in her book, Finding Meaning with Charles.
Janet’s talk is the “Importance of Positive Emotions for Caregivers.” Caring for someone with dementia can drain us of the emotional health we need day-to-day. Janet explores this exciting research as it applies to family and professional caregivers and their emotional health. She uses science, personal stories of caring for her husband during his neurological illness, and practical activities to explore positive ways to get through this challenging life experience.
Cathie Borrie has degrees in nursing, public health, and law ─ but nothing prepared her for the seven years she spent caring for her mother. Along this difficult but unexpectedly fascinating journey she discovered that recording conversations with her mother, writing a book, and learning to ballroom dance were ways to tell both her and her mother’s story. Her lyrical memoir, The Long Hello, was launched at The Museum of Modern Art in NYC in 2010, and excerpts have been shortlisted three times in the CBC Literary Awards. Her memoir is being adapted for stage by Cathie and Vancouver award winning director and playwright, James Fagan Tait. Currently, Cathie performs the text internationally, available both as a solo concert artist, and also accompanied by an actor and cellist. In her talk “The Long Hello” Cathie shares her journey with her mother, her experiences in recording her mother’s voice and how learning to ballroom dance provided a wonderful and useful metaphor in which to learn how to follow her mother into her reality, rather than try to lead her back into Cathie’s. Cathie learned both how to transform the caregiving relationship from one of despair and frustration into a time of profound new meaning and understandings, and ultimately, how to say a Long Hello to the totality of her mother’s heartbreaking ─ and often wondrous ─ experience.
Michael Ellenbogen was diagnosed with Young-Onset Alzheimer’s Disease at the age of 49. Prior to his diagnosis, he was a network operations manager for a Fortune 500 financial institution. Difficulty with work-related tasks eventually led to his early retirement. As a world-renowned Alzheimer’s and dementia advocate, he has been featured in nationally syndicated TV, radio and other media outlets. He has written for blogs, newspapers and websites and shared his personal perspective as a guest speaker. He is interested in motivating those with Alzheimer’s to raise their voices and reduce the stigma surrounding the disease. He believes that his diagnosis with Alzheimer’s disease is not the end for him, because he has so much more to give to the world. Michael wrote about his journey with the disease in his latest book entitled “From the Corner Office to Alzheimer’s.” In his talk, “Living With Alzheimer’s” Michael shares his story, giving insights into how Alzheimer’s affects his life.
Kirti Khalsa serves as the COO of the Alzheimer’s Research and Prevention Foundation. Her passion is keeping our elders healthy so they can have a good quality of life and continue to contribute to our communities. As a lifelong yoga practitioner, she also knows first-hand the impact of the lifestyle approach to healthy aging. The ARPF believes that memory loss is neither a normal nor natural part of aging. You can take action today to maximize your brain power and reduce your risk of developing Alzheimer’s, by following “The 4 Pillars of Alzheimer’s Prevention,” which is the name of her talk.
Ellayne S. Ganzfried, M.S., CCC-SLP is a speech-language pathologist and the Executive Director of the National Aphasia Association. Ellayne is a Fellow of the American Speech Language Hearing Association (ASHA). She is currently on ASHA’s Committee on Honors. Ellayne has created and managed several speech, hearing and rehabilitation programs in New York and Massachusetts. She is an adjunct instructor at Adelphi University-Garden City –NY. Ellayne has written articles and presented regionally and nationally on a variety of topics including aphasia, rehabilitation and leadership skills. Her talk, “Let’s Communicate: Strategies for Caregivers” explains how the loss of language and difficulty communicating occurs in various types of dementia. It can create increased frustration and challenges for the person and the family. She discusses communication strategies with specific examples.
Dennis Stack is founder of Project StoryKeeper, a 501c3 non-profit, which created the Family StoryKeeper Course in 2003 and the basis of the Legacy Matters Program. The course is now in use in over 800 Hospices, Home Care, Assisted Living and Veterans centers. He trained more than 5,000 volunteers and students to perform the role of StoryKeepers in their respective communities. Dennis’ talk, “Building Legacies Saves Memories and Unites Families” explains how The Legacy Building Program helps preserve those life experiences certain to be lost and in the process provides an engaging and productive activity. The LegacyStories.Org site allows those collected stories to be shared with family and friends while also giving those loved ones a means to provide the caregiver support.
Gary Joseph LeBlanc is the author of “Staying Afloat in a Sea of Forgetfulness,” “Managing Alzheimer’s and Dementia Behaviors” and co- author of “While I Still Can”. Also, a weekly columnist of “Common Sense Caregiving” published in the Tampa Tribune and Hernando Today and many other health publications. He also founded the Alzheimer’s/Dementia Hospital Wristband Project. His writings and speaking events utilize his 3,000 plus days and nights of personal caregiving experience to help other Alzheimer’s and dementia caregivers cope with the everyday challenges and emotional struggles of caring for the memory-impaired. Gary’s talk, “Alzheimer’s/Dementia Hospital Wristband Program” describes why and how hopsitalized dementia patients often don’t receive the the special care they require… and the results can be disastrous. In response, Gary founded the the Alzheimer’s/Dementia Hospital Wristband Program, currently being piloted at Brooksville Regional Hospital in Hernando County, Florida.
Harry Urban of Forget Me Not (Facebook Dementia Support Group) who nine years ago was diagnosed with Dementia, probably Alzheimer’s, walking out of the doctor’s office full of fear. For years he struggled with Alzheimer’s trying to understand what was happening to him. He realized he needed to understand what he was becoming so he could help others living with this disease. He founded Forget Me Not and started to tell what it is like to live with Alzheimer’s. Because Dementia has no language barrier he founded the Spanish group called No me olvides. He speaks out to raise dementia awareness. He was appointed one of the Purple Angels Ambassadors whose goal is to raise Dementia Awareness on the global level. He also has a daily blog at mythoughtsondementia.com where he describes his life so you may better understand what your love one is living. Harry’s talk, “My Thoughts On Dementia” gives his thoughts on Dementia from a person living the disease so you can better understand why persons with dementia do the things they do. Explain what he feels needs to be done to bring Awareness to this disease, improve quality of life and how he plans to help make it happen.
Denise Craig, Founder of Young Onset Dementia Support Group on Facebook is a psychologist dedicated to supporting people with dementia in many and varied ways. Having cared for her mother who experienced young onset dementia, she now provides dementia support in Queensland Australia. Denise works closely with Memory Clinics in her area providing counseling and education support for people experiencing dementia, their family and care providers. She created and administers a support group for people with Young Onset Dementia on Facebook and she says her goal is to help empower and motivate individuals to maximize their quality of life. In Denise’s talk, “Dementia Support – Facing the Times” she discusses Young Onset Dementia prevalence; what makes Young Onset Dementia potentially different to later onset dementia; it looks at the needs of people younger people with dementia; the purpose of Facebook page; the use of online support groups; demographics of users of this page, and a little of the good not so good aspects of a social media support group.
Lisa Hirsch is a popular blogger Mommy Hero with a worldwide audience. When her mother Ruth was diagnosed with Alzheimer’s disease, Lisa was surprised how it brought the two of them together. Her book, “My Mom My Hero” tells this mother-daughter story from entries in her blog. This is an uplifting and inspirational book for anyone who`s going through the and often lonely ordeal of caring for a loved one who suffers from this devastating illness. In Lisa’s talk “My Mom My Hero” she describes her journey, giving inspiration to others.
Marc Wortmann, Executive Director of Alzheimer’s Disease International (ADI) since 2007. He’s the former Exectutive Director of Alzheimer Netherlands, previously studying law and art history in the Netherlands, worked in retail and regional politics. Marc’s talk, “The Global Alzheimer Movement” will focus on the worldwide impact of Alzheimer’s Disease and other dementias, and the efforts to fight them globally.
Five years ago on a summer vacation, James Creasey discovered new connections with his father in the silence and confusion of dementia. Playing croquet together, Maxwell smiled. And his family now had an activity to enjoy with their ‘Poppa’. Since then, James has been running a weekly croquet program for the Alzheimer’s Association in Denver, Colorado. He founded Jiminy Wicket to make smiles for people living with dementia. One year ago, he created a program called Through Hoops to Hope, an intergenerational, Alzheimer’s based croquet program for high schools, colleges and senior communities. Having designed, developed and delivered a proof of concept in Denver he is expanding Through Hoops to Hope into 100 schools and colleges coast to coast across the country, into 10 schools in the UK and 5 in Australia in the 2013-14 school year. In James’ talk, “Jiminy Wicket and Through Hoops to Hope” he discusses these projects and how they help dementia patients and caregivers, and his vision for the future.
Tom and Karen Brenner of Brenner Pathways have created a positive approach to caregiving based on their shared experiences and expertise in aging and education. The Brenners speak about their innovative approach to caregiving throughout the United States. They are award winning writers who have been published in magazines and journals both in the US and abroad. Tom and Karen are writers and on-air presenters for WBEZ, NPR Chicago. They are co-authors of the book, You Say Goodbye and We Say Hello. In their talk, “You Say Goodbye and We Say Hello: The Montessori Method for Positive Dementia Care” they discuss their innovative and highly accessible method for family and professional caregivers. Their philosophy is based on the belief that they can find the remaining strengths and spared abilities of people living with dementia. They will discuss the strategies and techniques they developed to help caregivers reach out and stay connected to the people they love and care for.
Israel Ellen is an expert educator with years of international experience. He has been involved in the world of activity design for 15 years. Currently he is the founder and editor-in-chief of Memory Aid Magazine and memoryaid.org – a doctor-approved magazine and website designed to help seniors improve their memory. Through working with Memory-Aid, Ian has gained tremendous amount of theoretical knowledge and practical skills in the field of healthy aging and caregiver support that he hopes to share with others. In his talk, “The Six Pillars of Brain Health,” he explains that Brain Fitness is a key ingredient in our overall well being and quality of life. But what exactly is brain-fitness? In this highly interactive presentation you will learn the science behind brain fitness and the techniques necessary to help your clients (with or without memory impairments) enhance their cognitive abilities, improve their memory, and protect their mind against cognitive decline. By the end of the presentation you will have acquired the skills and tools necessary to implement a successful brain fitness class at your facility or for your client, define “brain fitness” and differentiate between an activity that is brain-healthy versus one that is merely entertaining.
I’m pleased to have as our Host David Sheldon. He is a Certified Professional Coach and was the Director the Health Coach Training Program. As the Host of Global Teleclass he’s worked with top authors and experts in health and wellness from around the world. You can reach him at SheldonServices@charter.net
My talk is the Introduction and Overview. Alzheimer’s disease is life changing for both those who are diagnosed and those who care for them. Being a caregiver doesn’t come with an instruction manual and trying to learn everything on your own can be confusing and overwhelming. Caregiving is hard and can lead to feelings of stress, guilt, anger, sadness … and isolation! That’s why we created the Triumph over the Isolation of Alzheimer’s Telesummit. During this 5-day online event, 17 leading experts will provide the information and resources you need to evaluate your needs, identify action steps and find solutions!
Just click the button below to Get Access To All the Sessions Now!
From my heart to yours… Laugh Well, Love Well and Live Well! Ina Gilmore, M.D. (Retired) “The Knitting Dr.” Founder, www.CaregivingWithPurpose.com and www.TheKnittingYarn.com Ambassador of Caregiving at www.HowToLiveOnPurpose.com